I completely report that we made it through 4 out of the 5 days of the ATG, because the pharmacy got it up really late so it didn't get started until 4:30 and it takes 6 hours and I am going to bed as soon as I finish writing this, but he was doing well halfway through. He is feeling good, though the steriods have really amped him up. They doubled the dose of steriods to counteract the ATG. The good news is that so far, he still is having a good time. He was just wearing us out. :)
Grandma and Grampa Richard visited today and Grampa did some painting with him while I got out for a bit. He loved it. He also got music therapy, made a halloween card with one of the child life specialists, and did a lot of painting with me. It was a very messy day. When they started his IV of Benadryl, he conked out for a much needed nap, which is good because I was a bit worried that he would bounce off the walls and pull his IV out again.
His platelet and red cell counts were up today. That was unexpected and a happy surprise. So, no transfusion today.
Tuesday, October 24, 2006
Hyper but Happy
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3 comments:
Good news! I am new to this blog thing but just want to say that it is amazing! You guys are amazing - especially Max. Kids can be so resiliant! And Children's Hospitals are wonderful places that you hope to never visit but when you do you realize the wonderful people that work there every day.
And M&Ms are amazing things....
Good news Dorothy, I am so glad that Max's treatment has got off to a good and relitively happy start for him. thinking of you all.
Leah
xxx
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