CBC 11/13/2006

Max went to MGH this morning for another platelet transfusion. It went very well today. No hives! Yay! May that keep up. It was another long day for us, though. The clinic was busy, and we got there a little later than we had hoped, and it ended up being a full day between dropping Lauren off at a friend's house (where she had a blast and napped like a champ.), driving in, waiting for the CBC results, waiting for the platelets, waiting for the transfusion, waiting to see if he got hives, and driving home. Max and I played Don't Break the Ice (or, as he calls it "Break the Ice" because he likes breaking it) and blocks for quite a while. A volunteer also played with him for a bit, so I got a break and actually got lunch today. Max was pooped and practically fell asleep on my back as I carried him to the car.

I talked to the doctor today and he said that he is very pleased with how well Max is doing. His cyclosporene level is still low, so they upped the dose again, but he is going longer than expected between transfusions. His red count has been dropping slowly, but he is still a ways from needing more red cells. His CBC showed new, young red cells, too, so at least his body is making some. His ANC was lower than I like to see (360), but the doctor said that was actually better than he expected at this point. We are still only a couple of weeks into this, though. It seems like he started treatment months ago, but it was only three weeks. This is going to be the longest three months of my life.

Max is still doing very well emotionally. He is also getting very good at play-acting taking blood. Who knows. Maybe he will be a doctor some day. Given the hours that his doctors work, I am not sure if that would be a good thing, or a bad thing. :)

WBC: 6.0
Hematocrit: 28.7
Hemoglobin: 10.5
Platelets: 15
ANC: 360