I met the mother of a boy who was diagnosed with aplastic anemia. One of the doctor's at MGH gave me her email and I finally managed to email her a couple of weeks ago. They live a couple of towns over. Her son was diagnosed in the summer of 2003 and has done very well. He is off at college now and is the picture of health. It is great to hear things like that. She is running the Boston Marathon as part of a team raising money for Mass General CancerCare for Children. She is training hard. If anyone is interested in supporting her, here is the link to her webpage: https://www.firstgiving.com/gaylec
It was really nice to talk to someone who has gone through much of the same things that we went through. I can't explain why, but it helps to talk to others who have gone through the same emotional experiences.
Max goes in to MGH on Wednesday for the monthly antibiotics, CBC and checkup. This is our first scheduled appointment since all this started. It is so nice to be at this point.
Monday, February 05, 2007
Sharing Experiences
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2 comments:
I sent a link to your blog to a friend who frequently gives platelets. He hadn't been responding as readily as he used to when the blood bank called to ask him to make another donation. But after reading your blog he was really enthusiastic again about going in.
Dorothy, I hadn't checked in here in a while. It was so nice to read about your "normal" scheduled appointment. Max is an amazing young boy. He is a tribute to you! Continued "normalcy"!!! Allysa
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